LET’S SAVE ZOEI – Let’s help!

WHO IS LITTLE ZOEI?

Zoei Penullar is a five year old girl who is suffering from a heart disease called CONGENITALLY CORRECTED TRANSPOSITION OF THE GREAT ARTERIES.

WHAT IS CONGENITALLY CORRECTED TRANSPOSITION OF THE GREAT ARTERIES?

According to her mother, Nouella, it was explained to her that:

“Zoei’s condition is called CONGENITALLY CORRECTED TRANSPOSITION OF THE GREAT ARTERIES.

“Instead of her arteries being reversed physically, it is her Left Ventricle (LV) and Right Ventricle (RV) which are reversed.

“It is congenitally corrected because even if these chambers are reversed, both ventricles are doing the supposed function of the other (the LV is functioning as the RV).

“However, since the RV’s normal function is to bring deoxygenated blood from the heart to the lungs, its muscle structure is not made for pumping blood all over the body, which is now its job in Zoei’s case.

“That is why Zoei’s RV is overworked and the tricuspid valve is weakening, thus the regurgitation.

“So since her RV is the one pumping blood all over the body, this means that blood which is supposed to be distributed is accumulating within her heart, hence its enlargement.”

WHAT DOES ZOEI NEED?

Due to the severity of her heart condition, Zoei needs a pacemaker as soon as possible. But the costs are very steep – operation, medication, hospital bills, etc.

Her first session of the surgery has been successful due to those who offered help to the family and we are hoping for another successful operation.

HOW IS ZOEI NOW?

Zoei was rushed to the hospital in the wee hours of the morning of March 06, 2012. A family friend narrates, “Nahihirapan daw huminga. Nas-stress na heart niya. Dalawa na yung regurgitation ng heart niya. Binago na raw yung dosage ng medicines niya. Whatever plans we have, pwedeng madaliin natin? I’m not a doctor, so I really don’t know what it means, but the mere fact na nahihirapan na yung bata, hindi na maganda yun.”

HOW CAN YOU HELP SAVE ZOEI?

You can help save Zoei by sending your donations to:

Nouella Laura P. Abig:
Banco de Oro (Timog-EDSA, Quezon City branch)
Savings account number:4690105815

Paypal Account: nouella.penullarabig@yahoo.com

Contact:
Nouella Penullar (Zoei’s mom) : 0915-9377015 | 0922-7888457

For more information, you may visit Zoei’s website:
http://helpsavezoei.wordpress.com/
https://www.facebook.com/pages/LETS-SAVE-ZOEI/346829818688555

For more inquiries on how you can help, you can also email us at:

dilimandiary@yahoo.com

A little help can make a difference – KK2011

Let us help Rian Miralles

Update
from:
I AM KCAT
Reposting from Sir Alfie Smith:
“What a shit day … I’m just recieving the initial results of Rians CT Scan …. Initial results show that Rian has stage 4 cancer with tumors already detected on his stomach and lungs …. he is so malnurished and lacking protein they are giving him Albumin … He also has water in his lungs … As you can see the prognosis is not good … All we can do is pray … Miracles do happen”

—–
Let’s pray for Rian’s health. Prayers move mountains..

At Ospital ng Maynila Medical Center

SAVE RIAN JAY MIRALLES on FaceBook

original link

Rian Miralles was diagnosed with soft tissue sarcoma – cancerous tumor that could be malignant. Let’s help him get a proper treatment. Spread the word.

Nananawagan po kami ng tulong sa lahat para po kay Rhian Jay Miralles.

RHIAN JAY MIRALLES
10 yrs old / boy
from BRGY.TOMINAMOS STA.RITA SAMAR CATBALOGAN CITY.

Now at EVMRC ( Eastern Visayas Regional Medical Center )

WE HAVE THE BIOPSY RESULT:
DIAGNOSIS: SOFT TISSUE SARCOMA
soft tissue sarcoma is a cancerous tumor (could be malignant) sa soft tissues ng body tumutubo…

For Your Help, Send Your Message to Grace Geraldino

A little help can make a difference – KK2011

Orphaned – Lalaban Kami (PSOD Song)

IN SUPPORT OF THE OBSERVANCE OF THE 3rd NATIONAL RARE DISEASE WEEK and IN SOLIDARITY WITH THE PATIENT FAMILIES OF THE PHILIPPINE SOCIETY FOR ORPHAN DISORDERS (PSOD) IN ITS ADVOCACY TO CARE FOR CHILDREN WITH RARE DISORDERS, THIS RADIO PROGRAM ( DZ…) IS PLEASED TO RELEASE THE SONG ENTITLED “LALABAN KAMI”

“Lalaban Kami” is a song expressing the intense will of children afflicted with a rare genetic disease, to fight the life-long challenges of their health condition.

The unconditional love of their parents and families, the presence of a loving and merciful God in their lives, provide them the mighty strength to live a life of HOPE and BRAVERY.

The patient families with the help of the Philippine Society for Orphan Disorders (PSOD):

Advocates for AWARENESS for these children and their health condition (KAALAMAN); Appeals for their “Equal Right to Life and Access to Health Care” (KARAPATAN), and

Seeks the general public’s support to help nurture them back to HEALTH and promote their WELL-BEING (KABUTIHAN)

To those who have extended them a kind heart, a helpful hand, and the means to save their lives and enhance their well being, this song is for you.

CREDITS

Produced for the patient families of the Philippine Society for Orphan Disorders

Song Performed by : God’s Little Sparrows, Gail Blanco and Daryl Reyes,
And Alvyn Tulagan

Written by : Edu Reyes, Tommy Katigbak, Alvyn Tulagan and Teddy Katigbak

Music by : Teddy Katigbak

Produced and Arranged by : Teddy Katigbak

Guitars by : Mike Villegas

Recorded, Mixed and Mastered by: Mark Villar @ HIT PRODUCTIONS

Audio Visual Production: Kris Calison and Art Gan of Stoplight Productions

Special Thanks to :

God’s Little Sparrows, Daryl Reyes, Gail Blanco, Cesar Buendia, Abner Tulagan, HIT PRODUCTIONS, Vic Icasas, Brian Cua, Dennis Cham, Alvyn Tulagan, Tommy Katigbak, and Salito Malca.

Kris Aaron S. Calison and Art Gan

original link

Orphaned
Kcat Can
By MARIA KATHRINA LOPEZ YARZA
February 20, 2012, 1:26am
MANILA, Philippines — Growing up, I had been misdiagnosed with different disorders and diseases — sebaceous cysts, severe migraine, Bell’s palsy, polio, scoliosis, myasthenia gravis, etc.

It was when I was 22 years old in 2004 when we learned that all my other previous medical conditions were related to one another, and Neurofibromatosis Type 2 (NF2) is what my disorder is called.

At that time, I needed an open-head surgery because of the three harmful tumors in my brain. Due of the rarity of my disorder, it took quite a long time before I was properly diagnosed.

NF2 affects 1 out of 25,000 people, and most people would see it as my misfortune. But I see it as a blessing because that prevents 24,999 other people from having it. Having this disorder made me aware not only about NF, but it also became an eye opener for me and for the people around me that there are a lot of other rare diseases that exist all over the world.

Rare Disorders

Did you know that Galactosemia is a disorder that affects how the body processes a simple sugar called galactose? Affected infants typically develop feeding difficulties, a lack of energy (lethargy), a failure to gain weight and grow as expected (failure to thrive), yellowing of the skin and whites of the eyes (jaundice), liver damage, and bleeding. Classic galactosemia occurs in one in 30,000 to 60,000 newborns.

Did you know that Gaucher disease is a chronic, progressive, inherited disorder in which lipids (glucocerebrosides), accumulate within cells and interfere with the normal functioning of various organs like the liver, spleen, lungs, bone marrow, and brain? The incidence of this disease is one in 40,000 to 60,000.

Did you know that Cornelia de Lange syndrome (CdLS) is a rare genetic disorder that is apparent at birth (congenital)? Associated symptoms and findings typically include delays in physical development before and after birth (prenatal and postnatal growth retardation); characteristic abnormalities of the head and facial (craniofacial) area, resulting in a distinctive facial appearance; malformations of the hands and arms (upper limbs); and mild to severe mental retardation. Although the exact incidence is unknown, Cornelia de Lange syndrome likely affects one in 10,000 to 30,000 newborns.

Did you know that Osteogenesis imperfecta (OI) or Brittle Bone Disease is a group of genetic disorders that mainly affect the bones? People with this condition have bones that break easily, often from mild trauma or with no apparent cause. Multiple fractures are common, and in severe cases, can occur even before birth. This condition affects an estimated 6 to 7 per 100,000 people worldwide. Types I and IV are the most common forms of osteogenesis imperfecta, affecting four to five per 100,000 people.

Did you know that Hunter syndrome, also known as mucopolysaccharidosis II or MPS II, is caused by an inherited deficiency in the enzyme iduronate-2-sulfatase (or I2S)? Lack of this enzyme affects the body’s ability to break down and recycle cellular waste. Hunter syndrome affects approximately one in every 155,000 people.

More than 7,000 rare diseases affect millions of people and 75 percent of those affected are children. None of these diseases have cure and only five percent have treatments and therapies as remedy.

Here in the Philippines, a rare disease called orphan disorder afflicts no more than one of every 20,000 individual.

Isolated

I learned these facts from Philippine Society for Orphan Disorders, Inc. (PSOD) — a non-profit organization that was organized to continue the efforts of doctors to ensure sustainability of medical and financial support of patients with rare disorders.

Filipino patients born with rare disorders or diseases are mostly “orphaned” by society and suffer from social abandonment because of lack of existing network of support to aid them. Medical help is elusive under the conditions of the country’s health priority. The nature of these illnesses is hardly known due to lack of information and only a few medical professionals, particularly in the country, are aware of these disorders and know how to diagnose and address these conditions.

With the help of the Institute of Human Genetics (IHG) and its partner organizations and donors, PSOD aims to be the central network for the advocacy and effective coordination of all viable efforts to sustain a better equality of life for individuals with orphan or rare disorders in the Philippines.

Rare Disease Week

Presidential Proclamation No. 1989 issued on February 8, 2010 declares the last week of February as ‘National Rare Disease Week’, from February 22 to 29, 2012. World Rare Disease Day will be held on February 29, 2012 with the theme “Solidarity: Rare But Strong Together”

PSOD aims to have a stronger awareness campaign for the general public in 2012 by involving all relevant stakeholders such as government agencies, healthcare institutions, local government units, non-government organizations, the media, and other private and public institutions in the campaign.

The PSOD believes that every person has the right to life even if their disease only affects a small number of people. For more awareness and support, visit: http://www.psod.org.ph

The word rare means “few, not widely known and recurring in distribution”; moreover, rare can also mean “something extraordinary and special”. People with rare diseases may be few, but they are not extinct. They are existent, and are also very special in many ways. They are entitled to the same basic rights and privileges as any normal person does. They are a special breed of God’s wonderful creation.

I am rare. I am as special as you are.

(The author is suffering from a rare genetic disorder called Neurofibromatois Type 2 (NF2). She maintains an online store (www.kcatyarza.com) that sells products she personally designed to benefit her hEAR Fund Raising Project. She was also a finalist in Cebuana Lhuiller’s Happiest Pinoy. If you have any questions you can reach the author through kcatyarza@yahoo.com.)

A little help can make a difference – KK2011

Lets help flood victims of storm ‘Sendong’

Here are some ways to help our kababayans who were donations for the flood victims of storm ‘Sendong’.

KAPATID

http://www.interaksyon.com/article/19865/tv5-kapatid-foundation-accepting-donations-for-storm-sendong-victims
Cash donations may be sent through the following accounts:
TV5 Kapatid Foundation Inc. BDO Savings Account No. 005310-410164 and
Bank of the Philippine Islands Savings Account No. 1443-05333-2
Donations in kind like food, clothing, utensils, blankets, mats, water containers, and medicines may be sent to News5 Aksyon Center, TV5 office in San Bartlolome, Novaliches, Quezon City.
For inquiries, please call News5 Aksyon Center hotline – 938-6393.
—–
KAPUSO

http://www.gmanetwork.com/news/story/234077/news/nation/dswd-kapuso-foundation-calling-for-donors-volunteers
METROPOLITAN BANK AND TRUST COMPANY (METROBANK)
Peso Savings
Account Name: GMA Kapuso Foundation, Inc.
Account Number: 3-098-51034-7
Dollar Savings
Account Name: GMA Kapuso Foundation, Inc.
Account Number: 2-098-00244-2
Code:MBTC PH MM
UNITED COCONUT PLANTERS BANK (UCPB)
Peso Savings
Account Name: GMA Kapuso Foundation, Inc.
Account Numbers: 115-184777-2
: 160-111277-7
Dollar Savings
Account Name : GMA Kapuso Foundation, Inc.
Account Numbers: 01-115-301177-9
: 01-160-300427-6
Code:UCPB PH MM
BANCO DE ORO (BDO)
Peso Savings
Account Name: GMA Kapuso Foundation, Inc.
Account Number: 469-0022189
Dollar Savings
Account Name: GMA Kapuso Foundation, Inc.
Account Number: 469-0072135
Code: BNORPHMM
PHILIPPINE NATIONAL BANK (PNB)
Peso Savings
Account Name: GMA Kapuso Foundation, Inc.
Account Numbe: 121-003200017
Dollar Savings
Account Name:GMA Kapuso Foundation, Inc.
Account Number:121-003200025
Code:PNB MPH MM
For more inquiries, contact GMA Kapuso Foundation through its 24-hour hotlines 928-9351 and 928-4299.
——
KAPAMILYA

https://www.facebook.com/note.php?note_id=10150529342939122
Sagip Kapamilya Hotlines (02) 411-4995(02) 394-92720917-887-4411 ==================== FOR IN-KIND DONATIONS* SAGIP KAPAMILYAABS-CBN Foundation Inc. Mother Ignacia cor. Eugenio Lopez St.Diliman, Quezon City *You may send rice, canned gods, noodles, biscuits, coffee, sugar, clothes, blankets, mats, medicines ==================== ABS-CBN CAGAYAN DE ORO and ABS-CBN DAVAO also accepting donations for relief operations ABS-CBN Cagayan De OroBarangay Bulua, Cagayan De Oro City ABS-CBN DavaoShrine Hills, Matina, Davao City ==================== FOR CASH DONATIONS 1. BDO Peso AccountAccount name: ABS-CBN Foundation Inc.-Sagip KapamilyaAccount Number: 39301-14199Swift Code: BNORPHMM 2. BDO Dollar AccountAccount name: ABS-CBN Foundation Inc.-Sagip KapamilyaAccount Number: 39300-81622Swift Code: BNORPHMM 3. PNB Peso AccountAccount name: ABS-CBN Foundation Inc.-Sagip KapamilyaAccount Number: 419-539-5000-13Swift Code: PNBMPHMM 4. BPI Peso AccountAccount name: ABS-CBN Foundation Inc.-Sagip KapamilyaAccount Number: 3051-1127-75Branch: West Triangle, Quezon CitySwift Code: BOPIPHMM 5. BPI Dollar AccountAccount name: ABS-CBN Foundation Inc.-Sagip KapamilyaAccount Number: 3054-0270-35Branch: West Triangle, Quezon CitySwift Code: BOPIPHMM
———–

RED CROSS

type RED (space) AMOUNT and send this to 2899 for Globe or 4143 for Smart. Those who would like to donate through G-Cash can text DONATE (space) AMOUNT (space) 4-digit M-PIN (space) REDCROSS and send this to 2882.
Cellphone users can donate to the Red Cross in the following denominations: P5, P25, P100, P300, P500, or P1,000 for Globe; and P10, P25, P50, P100, P300, P500, and P1,000 for Smart
———-
Iligan Bloggers Society, Inc. is accepting donations in kind for the victims of Typhoon Sendong in the city. We encourage the following items for donations: canned goods, noodles, bath and laundry soaps, toothpaste, rice, used clothings, slippers, and cash donations.

A little help can make a difference – KK2011

Kindly Help Baby John Michael Arones……

original link

We are calling for financial donations to BABY JOHN MICHAEL ARONES for his medical examination expenses at Davao Medical Center.

Baby John Michael Arones was born on September 27, 2011 at Andres Soriano Memorial Hospital Cooperative, Cumawas, Bislig City. He was the seventh child of Mr. Eugene Arones and Doris Arones, living at P-11 Core Shelter, Poblacion, Bislig City.

His father Eugene Arones was a warik warik vendor (vending fish on the sidewalk at the Mangagoy Public Market earning just P150-P200/day only) could not possibly think how to generate thousands of money to spend for the entire medical expenses of his son. He could not even fully support his other six children for their basic needs moreover to specially attend Baby John Michael’s daily supplement for food and medicines. While his mother, Doris together with his aunt managed to struggle for more than a month of sleepless night to care for him.

Baby John Michael was diagnosed to have congenital defect called “ANENCEPHALLY; MULTIPLE CONGENITAL MALFORMATION”. His attending Physician Dr. Rowena Dimaano expected him to survive for only a week after his birth but for an unexplained reason, he manage to struggle for his life up to the present.

We are appealing to every one of us, in our most humble way to help us generate an ample amount of money to be used for medical examination expenses for Baby Michael. The City Government under the leadership of Hon. Librado C. Navarro has already extended financial support for his medication, but this amount cannot pay all his laboratory examination.

Please contact our office for your donations:

LGU-ASSISTANCE OFFICE AT THE CITY DISASTER RISK REDUCTION MANAGEMENT OFFICE

ORBELE A. CARMEN, CDRRM Officer – +639391316674

YOUREALLY-LOVE SANGO, Assistance In-charge – +639293183361

Sgd. ORBELE A. CARMEN

CDRRM Officer

A little help can make a difference – KK2011

Shirts Against Cancer by Kanser Waryor

Hello everyone. The brachytherapy for the tumor in my nose will start soon and the cobalt therapy for my neck will start next week in Rizal Medical Center care of Dr. Efren Madrid. Instead of just asking money from you, I’ve decided to sell these shirts to raise funds for my treatment. I and my family have been fighting this disease since 2009 and our resources are already depleted. You can also help through donation, but buying these shirts will really be a great help to me and my family. Thank you so much. God bless. 🙂

Each shirt costs 300php. The sizes are unisex (TS, XS, S, M, L, XL, XXL) —> the sizes are similar to the sizes of Blue Corner shirts. To order, just text me @ 09325901818 or 09103636336 or just send me a message here in Facebook. The deadline of orders and payments will be on October 30, 2011. The shirts will be released on the 2nd week of November 2011 (around November 7).

There are several ways of claiming your shirts:
-To those who live in GMA, Cavite: just go to my house 😉
-To those who live in Carmona: we can meet up at Waltermart
-To those who live in Biñan: we can meet up somewhere near OP
-To those who live near UPD or inside UPD: we can we can set a schedule for buyers to claim the shirts somewhere in UPD
-To those who live in Metro Manila: we can meet up in Alabang (Starmall) or we can also set a schedule for buyers to claim the shirts in Glorietta or Megamall

Shirts can also be sent via LBC. (See last picture in this album to see the cost estimate of the shipping and handling fee.)

You can send your payments through my BPI bank account or you can give it to me in person. Details can be discussed when you send me a PM or SMS. 🙂

P.S. Thanks to Charles Dy para sa design ng shirts. 🙂

Just send me a message here in Facebook

Just text me @ 09325901818 or 09103636336

A little help can make a difference – KK2011